Wow, what a crazy few weeks we have had!
We started off by heading to Florida by plane on March 10th to see Jay’s parents. They have been there for quite some time since they are retired snow birds living up life. :). We got there on that Tuesday and had just been hearing about the coronavirus, but it didn’t seem serious. I wasn’t too worried about it. By the time we got there on Tuesday, we started looking for hand sanitizer because I always use hand sanitizer for public places. ZERO. Not a tube anywhere. We went to and called about 10 places. Then, we noticed that there was also absolutely no toilet paper anywhere. That made me panic, if I am being honest. I wondered why none of us had been panicking yet!
We ended up going to Sea World that next day. We found small bottles of hand sanitizer at the register at Sea World (of all places!!) and bought tons of them. We all used a lot of it before and after each ride as well as after touching surfaces. We enjoyed the day all in all.
The rest of the vacation was spent mostly at outdoor places or home. We changed our other plans to make sure that we put ourselves in positions to avoid highly trafficked areas. We thought it would be best to be careful. It seemed like every few minutes was a new article updating the case totals, a new area of the country where they were closing restaurants, and new warnings. We started getting very concerned. We ended up renting a car instead of flying home. It was the longest drive in history. Straight through 20 hours to avoid dealing with people and exposure at hotels. Even restaurants on the way home, we had to order and eat in the car because restaurant lobbies were closed. I felt like we were in an episode of The Walking Dead!!
And well, it has not gotten any better. Since getting home, upon recommendation by the CDC and the President, we have been quarantined. My lung transplant team has also contacted us all and told us that they are not having any of us patients come in for our monthly blood draws and breathing tests. I have had to document my oxygen saturations, blood pressure, and temperature two times a day at home. Also, I have been doing my at home breathing tests twice daily. This is so that if there is a dip in anything, we catch it quickly and can come up with a plan of action with the team. They also said that we are not to leave the house if it is not absolutely necessary, and same with the others in my family. So, we are a week in with no one in…and no one out. Safer for us!!
As far as how I am feeling about all of this. I am very nervous. I am obviously in the high risk category when it comes to the virus. The immunosuppressants I take to prevent my body from rejecting my lungs also prevent my body from being able to fight off illnesses. This is frightening. It is funny how it truly changes how you look at the world. All I see is germs everywhere right now. We are spraying down our mail with Lysol before bringing it in, not ordering meals from outside to keep out potential germs, etc. This has definitely changed life as we know it. I am terrified to get the virus not knowing if my body would be able to fight it off or not. I am continuing to take the medications to treat the LAM that is growing in my abdomen, and I am still getting the monthly IV treatments done in my house to try to get rid of the Antibody Mediated Rejection I am dealing with. She is coming tomorrow, and she has promised to wear a mask all day to limit exposure. I will continue to do those things and be diligent about all that I can.
What we HAVE done is enjoy family time. I feel blessed to have a warm home, comfortable couches and beds, clothes, and mostly…a loving family to play games with, chat with, and cuddle with. We are able to do things we haven’t done for a long time. We are usually so busy with sports and life in general. This break is refreshing. But, I do miss baseball season. If you know me, you know that I have an obsession with baseball, and watching my boys play is at the top of my list of things I cannot get enough of. But at the end of the day, after looking at other countries that are in so much pain, I am more than willing to make those sacrifices to ensure that we are safe.
I can’t believe the number of people who have reached out to me offering me their last bottle of hand sanitizer or their last package of toilet paper. People just leaving things on my doorstep so my family doesn’t need to leave. People taking time out of their day to text or call me to see how I am doing and how they can help. I have experienced a true outpouring of love. <3.
As usual, Jay is great with all of this. He stays on top of things! He has created a spreadsheet entitled, “Are we sick?” where he has been documenting all of my stats along with the family’s temperatures. He is on me constantly about staying on top of it.
I pray that our country bounces back from all of this quickly. I pray that people take heed of the warnings given and STAY HOME. I pray that God lays His healing hand on His people and that we have faith and trust in His love for us.